NA Advocacy USA, Inc.
Neuroacanthocytosis Advocacy USA, Inc.
Who We Are
Welcome to Neuroacanthocytosis Advocacy USA, Inc. - or to avoid tongue-twisting - NA Advocacy USA. We are a sister organization to the older, international Advocacy for Neuroacanthocytosis Patients organization based in London, but our purpose is the same – to raise awareness of diseases in the neuroacanthocytosis (NA) family, to support patients and caregivers, and to foster research into the causes , treatment, and cure of the NA family of diseases.
WE EXIST TO...
Educating the medical community and wider world about neuroacanthocytosis (NA) disorders
Support Patients and Caregivers
Offering help and a listening ear
Funding research towards a cure
"Rarely, a cure is identified in medicine; more commonly, for most of the neurodegenerative choreas, physicians are shepherds in ameliorating suffering. The patients, their families, and their loved ones need better treatments and ultimate cures. They are waiting urgently."