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In 2020, NA Advocacy USA successfully raised $50,000 from its Unlatch the Match appeal to meet a challenge grant of $50,000 from an anonymous donor. This resulted in a $100,000 award from NA Advocacy USA to the Icahn School of Medicine at Mt. Sinai in New York City for a promising brain research project called "Neuropathology of Neuroacanthocytosis." We again successfully raised additional funds to continue the grant beyond Year One in 2021-22. We are so very grateful to our generous donors.


The project involves brain tissue from deceased NA patients, some of whom we actually know. That’s how committed many NA patients and their loved ones are to eradicating NA. No one wants to see future generations suffer with these terrible diseases that affect multiple body systems.

As a result of your generous gifts,  in June 2023, the first article was published in a scientific journal - the Journal of the International Parkinson and Movement Disorder Society - on findings from the Neuropathology of Neuroacanthocytosis project. We are excited to be learning new and important information that helps further understand VPS13A (ChAc) and McLeod syndrome (XK). We need this critical research to continue. Your donations are making a very real difference.


Please consider a gift. You may use the DONATE button in the top right hand corner of the page to make your tax-deductible gift. Alternately, you may send funds to:


NA-USA, Inc.

2285 Harlock Road

Melbourne, FL 32934


We thank you!

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