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We remember those who have passed away from neuroacanthocytosis, and would like to publish memorials written by family members on this site.

If you have a loved one who has died, you may submit a memorial, along with one photo to the Neuroacanthocytosis Advocacy USA. You must be an immediate family member or get the family’s permission before we can publish it. All memorials should be sent to and permission must be given to edit for content and length. Information that should be included, at a minimum, is date of birth, date of death, full name and city, as well as the state or country where the person lived.

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